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Thursday, April 2, 2009

Season opener

Well the season officially starts today with the Creek playing Midland High. Jason is so excited about this season--he seems to be feeling much better this year and has a much clearer mind. Jason had another treatment yesterday--not sure what number that is (lost track)--so he woke up to his typically nausea. It's amazing how we can tell you exactly what's going to happen the days after treatment--it's like clockwork.

Max is doing extremely well--here was an update from earlier this week:
"WOW! We just saw Max yesterday (Sat.) and you wouldn't believe how well he is doing. :) He is getting therapy nearly 8 hours/day-every day, but we did see him on a couple of his breaks. Here's what's going on:
He had his trach plugged off for 24 hours so they are thinking that they will remove it very soon. He's talking-softly because of the trach, but he's definitely talking in a few word sentences! He talked to Paul on the phone. Not only can he get himself in and out of his wheelchair, but yesterday, he walked 400 feet! By himself! They are starting to feed him more and more through his mouth, with soft foods like applesauce and puddings. They need to make sure that after he swallows the food, it goes to his stomach and not his lungs (?) so when they are sure everything is working ok there, they will continue to add more and more. He is writing...he is adding/subtracting...he plays catch with George...he throws a ball up and has it come 2 inches from the ceiling, every time. As far as I can tell, he's using both arms/hands equally and normally. George said they have a driver's training area on site so Max will drive before he comes home. His expressions are the same...he still has that sheepish little grin."

The baseball team is going to be playing at Dow Diamond on Sunday, May 3rd at 2:00. This is the same day as the Miles for Max fundraiser. We are hoping to raise more money at the game for Max's family as well. It should be a great time. I will post more details as they become available.

Blessings for your day, Joslyn

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